中国红十字基金会的成长天使基金自2018年开始资助小胖威利综合征患儿，截至目前已经帮助了近700人次。据中国红基会透露，该基金旨在为2周岁以下的小胖威利综合征患儿提供资金支持，特别是那些经济困难的患者家庭。
小胖威利综合征是一种罕见的遗传性疾病，患者主要表现为肥胖、智力低下、面部特征异常等症状。这些症状给患者及其家庭带来了巨大的困扰和负担。然而，由于该病的罕见性以及治疗费用的高昂，许多家庭无法承担治疗所需的药物费用。
为了帮助这些经济困难的患者家庭，中国红基会成长天使基金通过资助药品的方式，为小胖威利综合征患儿提供了重要的资金支持。这些资金可以用于购买治疗该病所需的药物，帮助患者缓解症状，提高生活质量。
据了解，成长天使基金的资助范围包括了全国范围内的小胖威利综合征患儿。申请者需要提供相关的病历和经济状况证明，经过审核后，符合条件的患者将获得资金支持。这一举措为那些经济拮据的患者家庭提供了一线希望，让他们能够获得及时有效的治疗。
中国红基会的成长天使基金在资助小胖威利综合征患儿方面取得了显著的成果。这一举措不仅为患者提供了经济支持，还提高了社会对于罕见疾病的关注度。相信通过这样的努力，将有越来越多的患者能够获得帮助，享受到更好的生活质量。
中国红基会的成长天使基金在资助小胖威利综合征患儿方面的举措，再次彰显了该基金会在社会公益事业中的重要作用。希望这一善举能够得到更多的关注和支持，为更多需要帮助的患者提供援助，让他们能够重获健康和幸福。
英语如下：
News Title: China Red Cross Foundation Provides Assistance to Nearly 700 Children with Prader-Willi Syndrome
Keywords: Red Cross Foundation assistance, Prader-Willi Syndrome, economically disadvantaged families
News Content: The China Red Cross Foundation’s Growing Angels Fund has been providing assistance to children with Prader-Willi Syndrome since 2018, benefiting nearly 700 individuals to date. According to the China Red Cross Foundation, this fund aims to provide financial support to children under the age of 2 with Prader-Willi Syndrome, particularly those from economically disadvantaged families.
Prader-Willi Syndrome is a rare genetic disorder characterized by symptoms such as obesity, intellectual disabilities, and facial abnormalities. These symptoms bring immense challenges and burdens to patients and their families. However, due to the rarity of the disease and the high cost of treatment, many families are unable to afford the necessary medication.
To help these economically disadvantaged families, the China Red Cross Foundation’s Growing Angels Fund provides crucial financial support to children with Prader-Willi Syndrome through medication assistance. These funds can be used to purchase the necessary medication for treating the disease, helping patients alleviate symptoms and improve their quality of life.
It is understood that the scope of assistance provided by the Growing Angels Fund includes children with Prader-Willi Syndrome nationwide. Applicants are required to provide relevant medical records and proof of economic status. After a thorough review, eligible patients will receive financial support. This initiative provides a ray of hope for financially strained families, enabling them to access timely and effective treatment.
The China Red Cross Foundation’s Growing Angels Fund has achieved significant results in assisting children with Prader-Willi Syndrome. This initiative not only provides economic support to patients but also raises awareness of rare diseases in society. It is believed that through such efforts, more and more patients will be able to receive assistance and enjoy a better quality of life.
The actions taken by the China Red Cross Foundation’s Growing Angels Fund in assisting children with Prader-Willi Syndrome once again demonstrate the foundation’s important role in social welfare. It is hoped that this act of kindness will receive more attention and support, providing aid to more patients in need and allowing them to regain health and happiness.
【来源】http://www.chinanews.com/life/2024/03-03/10173395.shtml
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