全身满是脓疱，发作时又痛又痒，整夜无法安稳入睡……造成这一切的“罪魁祸首”，正是泛发性脓疱型银屑病(GPP)，这一种罕见皮肤病。南方医科大学皮肤病医院皮肤科首席专家、主任医师陈永锋教授近日在广州表示，此类患者发病时非常痛苦，但规范化诊疗可以有效控制病情。
银屑病是一种慢性的自身免疫性疾病，其特征是皮肤上出现红斑和银白色的鳞屑。其中，泛发性脓疱型银屑病(GPP)是最严重和最痛苦的一种类型，患者会出现全身性的脓疱和剧烈瘙痒。由于此病的罕见性，很多患者在发病时得不到正确的诊断和治疗，导致病情反复发作，严重影响生活质量。
陈永锋教授指出，规范化诊疗是治疗银屑病的关键。规范化诊疗包括：明确诊断、个体化治疗、定期随访和药物的合理使用。明确诊断是指通过详细的病史询问、临床检查和必要的实验室检查，排除其他皮肤病，确诊为银屑病；个体化治疗是指根据患者的病情、体质和需求，制定合适的治疗方案；定期随访是指患者在治疗过程中，定期到医院进行复诊，医生根据病情调整治疗方案；药物的合理使用是指患者在使用药物时，要严格按照医生的建议，不要自行停药或更改药物剂量。
陈永锋教授提醒，银屑病患者在治疗过程中，要有耐心和毅力，遵循医生的建议，坚持规范化诊疗，才能有效控制病情，提高生活质量。同时，银屑病患者应该保持良好的生活习惯，避免过度劳累和情绪波动，保持良好的心态，这对病情的控制和治疗也是非常重要的。
Title: Key to managing rare skin disease lies in standardized treatment
Keywords: Skin disease, standardized treatment, psoriasis
News content:
A skin disease that causes great distress for its sufferers is generalized pustular psoriasis (GPP), a rare condition characterized by widespread blisters and intense itching, making it difficult for patients to have a peaceful night’s sleep. Professor Chen Yongfeng, a leading dermatologist and chief physician at the Skin Disease Hospital of Southern Medical University, recently warned in Guangzhou that patients with this condition experience significant pain during flare-ups, but that standardized treatment can effectively control the disease.
Psoriasis is a chronic autoimmune disease where the skin develops red patches and scaling. Generalized pustular psoriasis (GPP) is the most severe and painful form, presenting with systemic pustules and severe itching. Due to its rarity, many patients fail to receive accurate diagnosis and treatment, leading to recurrent flare-ups that severely impact their quality of life.
Professor Chen emphasizes that standardized treatment is crucial for managing psoriasis. This includes: accurate diagnosis, personalized treatment, regular follow-up, and the rational use of medication. Accurate diagnosis involves a detailed medical history, clinical examination, and necessary laboratory tests to rule out other skin conditions and confirm the diagnosis of psoriasis; personalized treatment means developing a suitable treatment plan based on the patient’s condition, physical fitness, and needs; regular follow-up means patients returning for check-ups at the hospital periodically, with doctors adjusting the treatment plan as needed; and the rational use of medication indicates that patients should strictly follow the doctor’s advice and not arbitrarily stop taking medication or change drug doses.
Professor Chen reminds patients with psoriasis that patience and perseverance are essential during treatment, and they should adhere to the doctor’s advice and follow standardized treatment to effectively control the condition and improve their quality of life. Additionally, patients should maintain good habits, avoid overexertion and emotional fluctuations, and keep a positive mindset, which are also very important for controlling and treating the disease.
【来源】http://www.chinanews.com/life/2024/02-09/10162254.shtml
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