近日，曾在《摔跤吧！爸爸》中饰演二女儿的印度童星苏哈妮·巴特纳格尔因罕见的自身免疫性疾病——皮肌炎离世，年仅19岁。苏哈妮的离世引起了人们对皮肌炎这种罕见病的关注。
皮肌炎是一种自身免疫性疾病，病因尚不完全清楚。该病主要影响皮肤和肌肉，表现为皮肤红斑、肌肉疼痛和无力。皮肌炎的病情严重时，可导致呼吸肌和心脏肌受累，危及生命。据统计，皮肌炎的致死率相对较高，但具体数据因地区和治疗方法的不同而有所差异。
苏哈妮的离世让人们再次关注到罕见病患者的困境。罕见病是指患病人数较少的疾病，往往缺乏有效的治疗手段。据统计，全球约有7000种罕见病，但只有约5%的罕见病有特效药。在我国，罕见病的诊断和治疗仍然面临诸多挑战，如诊断难度大、医疗资源匮乏等。
苏哈妮的离世给我们敲响了警钟，让我们更加关注罕见病患者的生存状况。加强对罕见病的研究，提高诊断和治疗水平，关爱罕见病患者，已成为全社会的重要课题。希望苏哈妮的离世能引发更多人对罕见病和自身免疫性疾病的关注，为患者带来更多的希望和关爱。
Title: Indian Child Star Dies from Rare Disease, Raising Awareness of Dermatomyositis
Keywords: Indian child star, rare disease, dermatomyositis
News content:
Recently, Indian child star Suhani Bhatnagar, who played the second daughter in the film “Dangal,” passed away at the age of 19 due to a rare autoimmune disease – dermatomyositis. Her death has drawn attention to this rare disease.
Dermatomyositis is an autoimmune disease whose exact cause is not yet fully understood. The disease primarily affects the skin and muscles, presenting symptoms such as skin rashes, muscle pain, and weakness. In severe cases, dermatomyositis can lead to involvement of the respiratory and cardiac muscles, endangering life. It is reported that the mortality rate of dermatomyositis is relatively high, but the specific data varies depending on the region and treatment methods.
Suhani’s passing has once again brought attention to the plight of patients with rare diseases. Rare diseases are those that affect a small number of people and often lack effective treatment methods. It is estimated that there are about 7000 rare diseases worldwide, but only 5% of them have specific medications. In our country, the diagnosis and treatment of rare diseases still face many challenges, such as difficulty in diagnosis, lack of medical resources, etc.
Suhani’s death serves as a wake-up call, reminding us to pay more attention to the living conditions of patients with rare diseases. Strengthening research on rare diseases, improving diagnostic and treatment levels, and showing care and concern for patients with rare diseases have become important tasks for our entire society. It is hoped that Suhani’s passing can lead to more attention being paid to rare diseases and autoimmune diseases, bringing more hope and care to patients.
【来源】http://www.chinanews.com/life/2024/02-20/10166077.shtml
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