近日，由中国罕见病联盟、中国红十字基金会、全国罕见病诊疗协作网办公室等共同主办的“2023 年中国罕见病大会”在北京开幕。来自全国罕见病政策制定、临床诊疗、药物研发、药品保障等的数万名同道和罕见病患者在线上线下参与了会议。
此次大会旨在促进罕见病政策制定、临床诊疗、药物研发、药品保障等领域的交流与合作，以推动罕见病治疗和预防工作的进展。会议涵盖了罕见病的识别、诊断、治疗和管理等方面的内容，来自医学研究、临床医疗、政策制定等领域的专家学者进行了深入的研讨和交流。
我国已累计登记约 78 万例罕见病病例，这对于罕见病的研究和治疗具有重要意义。此次大会的召开，将有助于推动罕见病领域的研究与应用，提高罕见病的治疗水平和生存率，为罕见病患者提供更好的医疗服务和保障。
英文标题：2023 Chinese Conference on Uncommon Diseases: 78,000+ rare disease cases
英文翻译：The 2023 Chinese Conference on Uncommon Diseases, held in Beijing, aims to promote collaboration in the field of uncommon diseases treatment and prevention. The conference covers 识别、诊断、治疗和管理等方面的内容，attracting thousands of experts and patients from medical research, clinical medicine, policy making, and other fields for in-depth discussions and exchanges.
With a total of more than 780,000 rare disease cases registered in China, this conference is of great significance for the research and treatment of uncommon diseases. The opening of this conference will likely promote the progress of uncommon disease research and application, improve the treatment and survival rate of uncommon diseases, and provide better healthcare and support for patients with uncommon diseases.
【来源】http://www.chinanews.com/life/2023/10-23/10099055.shtml
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